Illustrating dementia | Intellect Skip to content
1981
Volume 7, Issue 1-2
  • ISSN: 2052-0204
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Abstract

Debate about dementia commonly elicits horror and despair. Yet, dementia is a syndrome of many distinct brain disorders. While progression is expected, memory scores are highly variable in dementia. Illustration plays a part by emphasizing the shrivelled brain of advanced Alzheimer’s. Texts typically refer to wasting in the Alzheimer’s brain although it is selective and may be absent in some cases. Scans emphasize the anatomy of dementia rather than its variability and potential for relearning. Zombies have become associated with symptoms of dementia in both scholarly discourse and popular conversation. A combination of these metaphors and the implication of ‘brainless behaviour’ may contribute to the stigma around dementia and ‘malignant practices’ reported among care staff, such as mockery and disparagement, which disempower people with dementia. However, people with dementia can describe their own experience. An increasing number of memoirs, blogs and podcasts explore the subjective experience of living with dementia. Art by people with dementia reveals persistent creativity and may help them to retain a sense of identity and self-worth. My animated documentary, , illustrates the past life of ‘Frank’, a man with advanced dementia. The technique of charcoal reduction, with its subtle residue of past images, is a metaphor for the selective memory loss typical of Alzheimer’s dementia. The theme of animation therapy in mental health and community arts has gained support in recent years. I discuss the scope for co-produced animations by people who have dementia and the skills required by arts health workers in this field.

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2020-08-01
2024-04-20
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References

  1. American Medical Association ( 2018), ICD 10: The Complete Official Codebook, Chicago, IL:: American Medical Association;.
    [Google Scholar]
  2. Alzheimer’s Society ( 2017;), ‘ Terry Pratchett interview. ’, YouTube , https://www.youtube.com/watch?v=sUHARRJhjso. Accessed 28 December 2019.
  3. Alzheimer’s Society ( 2019;), ‘ Living with dementia videos. ’, YouTube , https://www.youtube.com/watch?v=qn-dInwYRQ0. Accessed 29 December 2019.
  4. Arts4dementia ( 2013;), ‘ Reawakening the mind. ’, arts4dementia.org.uk , https://arts4dementia.org.uk/wp-content/uploads/2017/09/Reawakening_the_Mind-2.pdf. Accessed 30 December 2019.
  5. Barocco, Frederica,, Spallazzi, Marco,, Concari, Letizia,, Gardini, Simona,, Pelosi, Annalisa, and Caffarra, Paolo. ( 2017;), ‘ The progression of Alzheimer’s disease: Are fast decliners really fast? A four-year follow-up. ’, Journal of Alzheimer’s Disease, 57:3, pp. 77586.
    [Google Scholar]
  6. Behuniak, Susan. ( 2011;), ‘ The living dead? The construction of people with Alzheimer’s disease as zombies. ’, Ageing and Society, 31:1, pp. 7092.
    [Google Scholar]
  7. Camic, Paul,, Crutch, Sebastian J.,, Murphy, Charlie,, Firth, Nicholas C.,, Harding, Emma,, Harrison, Charles R.,, Howard, Susannah,, Strohmaier, Sarah,, Van Leewen, Janneke,, West, Julian,, Windle, Gill,, Wray, Selina, and Zeilig, Hannah. ( 2018;), ‘ Conceptualising and understanding artistic creativity in the dementias: Interdisciplinary approaches to research and practise. ’, Frontiers in Psychology, 9, p. 1842, https://doi.org/10.3389/fpsyg.2018.01842. Accessed 14 June 2020.
    [Google Scholar]
  8. Cheston, Richard, and Bender, Michael. ( 1999), Understanding Dementia: The Man with the Worried Eyes, London:: Jessica Kingsley;.
    [Google Scholar]
  9. Cheston, Richard, and Christopher, Gary. ( 2019), Confronting the Existential Threat of Dementia: An Exploration into Emotion Regulation, London:: Palgrave MacMillan;.
    [Google Scholar]
  10. dementia-wellbeing.org ( 2013;), ‘ MRI scan images of dementia. ’, dementia-wellbeing.org , 30 November, http://dementia-wellbeing.org/tag/wayfinding/. Accessed 30 December 2019.
  11. Fancourt, Daisy, and Steptoe, Andrew. ( 2018;), ‘ Cultural engagement predicts changes in cognitive function in older adults over a 10 year period: Findings from the English Longitudinal Study of Ageing. ’, Scientific Reports, 8:1, pp. 18.
    [Google Scholar]
  12. Ford, Karen. ( 2018;), ‘ Art, music, story: The evaluation of a person-centred arts in health programme in an acute care older persons’ unit. ’, International Journal of Older People Nursing, 13:2, p. e12186.
    [Google Scholar]
  13. Hani, Melanie. ( 2017;), ‘ Defining animation therapy: The Good Hearts Model. ’, Animation Practice, Process & Production, 6:1, pp. 1751.
    [Google Scholar]
  14. Honess Roe, Anabelle. ( 2013), Animated Documentary, London:: Palgrave MacMillan;.
    [Google Scholar]
  15. Kentridge, William. ( 2010;), ‘ Pain and sympathy: Art21 “Extended Play”. ’, YouTube , https://www.youtube.com/watch?v=m1oK5LMJ3zY. Accessed 21 April 2020.
  16. Kitwood, Tom. ( 1997), Dementia Reconsidered: The Person Comes First, Buckingham:: Open University Press;.
    [Google Scholar]
  17. Leaf, Caroline. ( 2016;), ‘ Caroline Leaf on The Street. ’, YouTube , https://www.youtube.com/watch?v=Xsb29V2ecj4. Accessed 21 April 2020.
  18. Marshall, Karrie. ( 2013), Puppetry in Dementia Care: Connecting through Creativity and Joy, London:: Jessica Kingsley;.
    [Google Scholar]
  19. Mason, Helen, and Ashworth, Joan. ( 2013;), ‘ Animation in therapy: The innovative uses of haptic animation in clinical and community therapeutic practice. ’, Academia.edu , https://www.academia.edu/31505571/Animation_in_Therapy_The_innovative_uses_of_haptic_animation_in_clinical_and_community_therapeutic_practice. Accessed 21 April 2020.
  20. Merrick, Kimberley,, Camic, Paul,, O’Shoughnessy, Margaret. ( 2016;), ‘ Couples constructing their experience of dementia: A relational perspective. ’, Dementia, 15:1, pp. 3450.
    [Google Scholar]
  21. Mitchell, Wendy. ( 2019), Somebody I Used to Know, London:: Bloomsbury;.
    [Google Scholar]
  22. Parr, Susan,, Byng, Sally,, Gilpin, S,ue and Ireland, Chris. ( 1997), Talking about Aphasia, Buckingham:: Open University Press;.
    [Google Scholar]
  23. Rayment, Dane,, Niju, Maya,, Zheng, Rui, and Kuruvilla, Taron. ( 2016;), ‘ Neuroimaging in dementia: Update for the general clinician. ’, Progress in Neurology and Psychiatry, 20.
    [Google Scholar]
  24. Thompson, Rachel. ( 2011;), ‘ Using life story work to enhance care. ’, Nursing Older People, 23:8, pp. 1621.
    [Google Scholar]
  25. Windle, Gill. ( 2018;), ‘ The impact of a visual arts programme on quality of life, communication and well-being of people with dementia: A mixed-methods longitudinal investigation. ’, International Psychogeriatrics, 30:3, pp. 40923.
    [Google Scholar]
  26. Zeilig, Hannah,, West, Julian, and van der Byl Williams, Millie. ( 2018;), ‘ Co-creativity: Possibilities for using the arts with people with a dementia. ’, Quality in Ageing: Policy, Practice and Research, 19:2, pp. 13545, https://doi.org/10.1108/QAOA-02-2018-0008. Accessed 14 June 2020.
    [Google Scholar]
  27. Smith, Nigel. ( 2020;), ‘ Illustrating dementia. ’, Journal of Illustration, 7:1&2, pp. 241250, doi: https://doi.org/10.1386/jill_00033_1
    [Google Scholar]
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  • Article Type: Article
Keyword(s): animation; dementia; documentary; film; health; therapy
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